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Spina Bifida Research

Every year, universities, hospitals, pharmaceutical companies, and research labs seek people of different ages and backgrounds to help expand our understanding of spina bifida through scientific research.
Past studies include using probiotics to treat urinary tract infections (UTIs), genetic counseling for parents, self-esteem in social settings, cognitive rehabilitation, prenatal endoscopic repair, coping skills training, bone loss prevention, and medications for neurogenic bladder. 


If you would like to learn about participating in future studies, complete the form below. You will only be contacted if a study is relevant to you.

We adhere to HIPAA statute and rules to the best of our ability and the security provided by our partner organizations and vendors. Personal information is collected for the purpose of matching individuals with the appropriate research study. Your personal information is never accessible to the general public.
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